The Champlain Valley Down Syndrome Group is an affiliate of the two primary national advocacy groups for people with Down syndrome:  the National Down Syndrome Congress and the National Down Syndrome Society.  These groups, and their web sites, offer a wealth of information for new and expectant parents, as well a wide array of topics covering education, health care and independent living.  We encourage you to visit these web sites – and to become members.


Vermont Family Network

Vermont Family Network (VFN) promotes better health, education, and well-being for all children and families, with a focus on children and young adults with special needs.

Vermont Family Network began in July, 2008, when Vermont Parent Information Center (VPIC) and Parent to Parent of Vermont merged. Since the merger, VFN has continued to offer the same support, services, and referrals to children and families that were once offered by VPIC and Parent to Parent.

Our office is located at 600 Blair Park Road, Suite 240 in Williston, Vermont and we are open Monday through Friday from 9:00 am until 4:30 pm.  For more information about our programs and services, please contact us at (802) 876-5315 or 1-800-800-4005.

Eli’s Heart

I would like to introduce you to Eli’s Heart, a 501 c3 organization that helps families with travel expenses associated with medical procedures.  Our son Eli was born with Down Syndrome and has had several surgeries in his 2 years of life.  We understand the future financial concerns for all families that have a child with DS, so we want to try to focus on supporting our community.  For families that need to travel for surgeries, we provide plane tickets, hotel rooms, gas cards, meal cards, etc.  Even though our website states our support is for heart surgeries, we are willing to support other procedures.

If you could pass along our information to the families you support and post the below links to your website, we would very much appreciate it.
Casey Craig
President, Eli’s Heart


Other Web Resources


Web Site Title URL Description
Wii Play Together A web site for children with Down syndrome and their use of the Wii gaming system
Math, Apps and Special Education A web site for children with Down syndrome and the various math related apps available for use on the iPAD